Today began with a hospital visit dropping back my sleep apparatus. Then home, at some point in the afternoon I could not stay awake any longer and had a nap. I planned to do a workout early evening, and was just putting my trainers on when Dad asked me to take his temperature. He’s had a virus, I took it and it was high. So workout cancelled.
This evening and another hospital visit with dad. Usual checks before they decided he was fine to go home. Exhausted.
Night peeps x
This has been a really good week. I collected two female hedgehogs from a rescue centre on Tuesday. I will keep them for a week before allowing them to come and go as they please.. And then they may go off and find homes elsewhere.
On Tuesday I also finally dragged myself to the doctors, equipped with a list of ailments that need investigation. I’ve had lots of bloods taken to be tested and am going to have an ultrasound scan.. And also I might see a sleep specialist. The doctor was really lovely.. So I think I will see her from now on.
Dad seems to be doing well.. Although he has lost a lot of weight and has been sick two days a week immediately following his chemo. He’s taken a different anti sickness this week, and has been much better. His consultant thinks he is doing well anyway, so that is brilliant.
On Wednesday my friend arrived. I met her from on here originally, but never expected we would meet. We have spent a really lovely few days together so far.. We have had meals out and seen a few different places locally. I’m so pleased she came to see me.
It is so unusual that I feel so comfortable with anyone outside of my immediate family. But with this friend I feel so at ease. Tomorrow she is hopefully coming to meet my parents and enjoy a takeaway here. Sunday she leaves, but I don’t really want to think about that.
I am sorry my posts have been few and far between recently. I shall try to do better..
I lie here listening to my dad vomiting in a bucket in the room next door. There is nothing I can do, he wants to be left alone. Most likely we will end up back in hospital either tomorrow or over the weekend, because he is unable to drink water let alone eat anything.. and he ends up getting dehydrated. I am guessing this will be our routine every week for the next 6 months, although he has one week off between each 4 week cycle of chemo.
I want to apologise that my writing is almost always melancholy. I didn’t know what this blog would be when I started it just over a year ago.. I hoped it would be a way of reaching out and sharing my poems etc, but recent times it has mostly been about our journey with Dad’s illness.
I have made one friend through this medium.. someone really special. We talk on the phone for hours and in a few weeks she will be visiting the uk, so we will get to meet. I’m really excited but also nervous. I will need to brave going out to meet her, but I really want to do it. I hope that she will like me in person.. I can be quite awkward. I feel I have made a friend for life and I am really lucky.
Did our online shopping order today. I made lamb stew yesterday, and Dad loved it so much(chemo tablets were this morning) I am going to make it again next week. I do all our shopping online, and because I do all the cooking I get free use of Dad’s credit card (oops) 😉 I may have added caramel chocolate on there.. and sweet chilli nuts.
Yesterday sucked a lot. I bloody hate valentines day. I am happy for those who are loved-up.. but God it is painful for those who long for love but are alone. And to be 37 having never.. not once.. had a meal or flowers or anything at all for that day. Few could understand the loneliness I have endured my entire life. I’ve lacked friendship and love. Yes I am lucky to have had my parents.. but actually a parents job is to raise you and set you free into the world to make your own life. And things have never been perfect even within the family, especially when I was a little girl. I have not made my own life and I am a disappointment as a daughter as well as everything else.
Had to end on a negative note, didn’t I ! Back to something good.. here’s looking forward to my friend’s visit.
Love and peace to you all, thank you for taking time to read my nonsense.
Had to bring dad back to hospital last night as he couldn’t eat, drink or pass urine and he was retching to be sick the whole time. They kept him in overnight to rehydrate him and give him anti sickness intravenously.
Sitting here now listening to constant beeps. Witnessing the other patients.. I always notice the other people. Often I wonder if they have anyone to visit them and wish I could help them in some way. But I can’t.
I always hated hospitals. Sitting here it is impossible to pretend we are not all fragile transient beings. Once all is said and done, we each end up the same. Powerlessly in decline, trying to hold on to what is not ours to keep.
The NHS is amazing. The staff are amazing. If our government continues to destroy this they will have so much blood on their hands to be ashamed of. But thank God for the incredible hard work of those still trying against the odds to keep it going and offer care to those most vulnerable.
Finally I managed to get my hair done today. Six months since it was last done. No more dark roots.. Back to being blonde. Pointless really as not many if any will see it. But I will not have to look at those dark roots anymore.
My hairdresser is lovely.. She knows a little of my situation and is always really kind and caring towards me. I like her very much. I think she likes me, but that could be just pretend for business purposes.
Dad drove me there and picked me up. He has only just been able to drive again this week. The last time he drove was back from Stanstead when we returned from Greece. I had no idea how bad his double vision was. I screamed once when the vehicle was getting closer and closer to the van we were overtaking on the motorway. He swerved away, but I figure we were closer to our end. Sometimes I think it would have been better if we had all gone together. But then I consider the poor other driver.. And no it would not be better to drag someone else down. Of course dad should not have driven. He admits that himself now, but mum and I had no idea.
He is ok driving now as his eyesight has returned to normal. The radiotherapy and chemo appear to have shrunk that tumor for the time being. So that is good.
But he has missed another two weeks of chemo.. We were back and forth from hospital with his high temperatures and nausea, dehydration and lack of appetite. He still can’t eat much and only really bland food.
I feel in a bad place mentally at the moment. Really depressed, really hopeless. I look at my life and seriously think what a mess it has been, some of my own creating,.. But largely I just don’t feel I could ever belong in this world. I am such a rare species and people just don’t get me.
I’m currently feeling myself going down dark paths again.. Starting to obsess about not eating. Hating myself lots, wanting to drink desperately but that is not possible because I know mum would smell it on my breath straight away. Engaging in dangerous chat on the Internet (my oddest addiction). Sometimes I just crave to be wanted. By men. Sometimes I long to be a woman. I’m frustrated.. With everything.
But for now I must go cook dinner for mum. Dad doesn’t need me for much now. He won’t eat my food and doesn’t need me to drive him. I’m back to being useless.. But of course it’s good that he is improving. I love him and want the best.
Here’s a couple of pictures of the lasagne I baked last night
I’m going to write properly whenever I get the chance..
In the meantime a quick update. Wednesday afternoon dad started getting really bad again. It took me from when I first called the doctors at 5:15 pm until 5:45 pm the following day to get help for him. No sleep, my mum was being held hostage in the bedroom. Police burst in and dad went flying. Dad tried jumping out of the window but somehow we managed to stop him.. He wouldn’t talk to any of us, it was awful.
Finally psychiatrists came and they took him to a mental health clinic where he remains. Yesterday mum and i visited.. But he blames us for putting him there and thinks we betrayed him.
I’m so so devastated. My heart is breaking over and over again..
I’ve come up to my cold and lonely room so tired and in need of sleep. I struggled to sleep already, but the events of the last week have left terrible scars. If I were to explain, it would not ever put across quite what it has been like. But I shall try…
I believe my last post was about last Monday night when Mum was being sick and Dad started to talk nonsense. Well things got progressively worse as the week went on. Tuesday he was terrible and that night I managed to get him to go to bed eventually, Wednesday he was worse and showing serious signs of paranoia. He seemed to see me as the enemy and was trying to control which room I could be in and what I could do. Mum and I both struggled to get him to go to bed but managed it eventually..
But Thursday I decided that Mum and I could no longer cope alone. I phoned my brother and asked him to come and be with Dad whilst Mum and I went to talk with a doctor about Dad. Our usual doctor was away and so we saw a woman, and she was so unhelpful and unsympathetic, we were very upset. She did agree to send an emergency doctor to our house later to assess Dad.. At this point Mum and I were so upset, we didn’t want to go straight home so we popped for coffee.
When we got home, Dad and my brother had been chatting. Apparently Dad kept running out and chucking used teabags out the door. Not long after our return the doctor we had seen earlier came. Amazingly she apologised for being so unsympathetic earlier.. and then she talked to Dad, took his bp etc. She suggested that she send a mental health assessor but that the soonest appointment would be the next morning.
As for the rest of the day.. you just had to be there to believe it. He was doing the weirdest things, wouldn’t let anyone go to the bathroom without a fight, wouldn’t let my brother cook for us and confiscated the shopping he brought. He peeled and cooked one potato.. and no word of a lie, he stood looking at this saucepan of cooked potato for 3 and a half hours. Nobody could go anywhere or do anything, and we couldn’t carry on like that. I phoned my uncle (Dad’s brother) and he came straight over.. and once he saw how bad Dad was we all agreed to try and get him in to hospital that night. Well.. that was the idea, but it took until 5am. We were all up all night and dad was still pacing around stopping anyone from going to the toilet or to get a drink. It was the weirdest, scariest, most heartbreaking night I’ve ever had. Dad wouldn’t let me near him and his eyes looked empty like he wasn’t there anymore.
I will continue this tomorrow, as the story doesn’t end there.